13-year-old girl with cancer mandated to have surgery over mom's objections

  
Via:  freefaller  •  one month ago  •  91 comments

13-year-old girl with cancer mandated to have surgery over mom's objections

S E E D E D   C O N T E N T


An Oregon court is ordering that a 13-year-old girl with a rare liver cancer have surgery and receive other medical treatment despite the objections of her mother.

The battle over Kylee Dixon's treatment began after her mother, Christina Dixon, halted a doctor-prescribed regimen to instead pursue alternative medicine such as CBD oil and vitamins, NBC affiliate KGW8 in Portland reported.


Dixon has said that after Kylee went through six months of chemotherapy, she could no longer watch her daughter suffer.


“The best way I can describe it is like my kid was on death row,” Dixon said, according to KGW8. “Every single time — you literally feel your kid’s life getting taken away.”

But the state stepped in, with the Clackamas County juvenile court's filing a dependency petition in March that said Dixon's decision amounts to neglect and "creates a risk of harm to the child.”

In June, Kylee was ordered to be placed in state custody.

On June 10, a sheriff’s office in Oregon put out a missing-endangered poster for Kylee, saying the mother was ignoring Kylee’s need for medical treatment, KGW8 reported. Three days later, police found the two in Nevada and placed Kylee in child-protective custody.

Some Oregon residents side with the mother, holding rallies in Portland and Salem and calling the state's decision to remove Kylee "medical kidnapping."

Kylee herself recorded an emotional YouTube video, "I'm On Death Row For Surviving Cancer," asking for help in her pursuit of alternative medicine instead of chemotherapy.

Ultimately, in July, a judge ruled that the state, not Dixon, would make medical decisions for Kylee.

“I’m going to let the surgeons do what they need to do,” Judge Heather Karabeika of the Clackamas County Circuit Court said at the time. And last week, Dixon turned herself into police . She faces charges of criminal mistreatment and custodial interference

The state this week moved forward with its plan to get Kylee back in cancer treatment, saying that she must attend a doctor’s appointment and that she is on the path to get surgery to remove a tumor.

The court also requested that Kylee be placed in the care of a family member, as contact between her and her mother has been largely cut off and she remains in foster care.

Dixon is still fighting the state for control over her daughter's care.

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Freefaller
1  seeder  Freefaller    one month ago

Definitely agree with the courts in this case, the mother is unfit to make the correct medical decision for her daughter

 
 
 
Willjay9
1.1  Willjay9  replied to  Freefaller @1    one month ago

Soo....if the daughter then refuses treatment....strap her down and force it on her?!

 
 
 
Freefaller
1.1.1  seeder  Freefaller  replied to  Willjay9 @1.1    one month ago
if the daughter then refuses treatment

I suspect a 13 yo cannot legally do so however will defer to those more knowledgeable about the law than myself

strap her down and force it on her?!

I would think counselling, medication, time away from her mothers influence and anesthesia will make the straps unnecessary.  But were it to come down to death or straps I'd be fine with them.

 
 
 
Tacos!
1.1.2  Tacos!  replied to  Freefaller @1.1.1    one month ago
time away from her mothers influence

What's wrong with mother's influence? According to the story, they have gone through conventional medical treatments.

Kylee went through six months of chemotherapy

It's not like mom is anti-medicine or has been ignoring the illness.

anesthesia will make the straps unnecessary

Maybe they could just sneak up on her with a rag soaked in chloroform.

 
 
 
sandy-2021492
1.1.3  sandy-2021492  replied to  Tacos! @1.1.2    one month ago
they have gone through conventional medical treatments.

She has not completed treatment.

 
 
 
Freefaller
1.1.4  seeder  Freefaller  replied to  Tacos! @1.1.2    one month ago
What's wrong with mother's influence?

Normally nothing, in this case her childs death

It's not like mom is anti-medicine or has been ignoring the illness.

I agree she isn't up to a point, but she is now ignoring the best treatment in favour of a unknown/unproven treatment

Maybe they could just sneak up on her with a rag soaked in chloroform.

Don't be silly hospitals don't use chloroform anymore

 
 
 
Tacos!
1.1.5  Tacos!  replied to  sandy-2021492 @1.1.3    one month ago

That sounds like it's the case, but many times doctors want to keep going and going and the patient has the right to decide whether or not the treatment is doing any good and whether or not she should keep going with it. Sometimes, patients make a decision that may not result in the best physical outcome for them, but it remains their right.

I don't know what the right medical choice would be in this situation, but I do wonder about whether or not the girl and her mom are having their rights trampled upon.

 
 
 
sandy-2021492
1.1.6  sandy-2021492  replied to  Tacos! @1.1.5    one month ago

Patients' rights are more complicated when the patient is a minor, as in this case.  Then, the parent or guardian makes medical decisions, but is expected to make them in the patient's best interests, not based on some crap being pushed by the Gwyneth Paltrow crowd.  Patients who use alternative "medicine" are more likely to die than patients who are treated conventionally.

 
 
 
Willjay9
1.1.7  Willjay9  replied to  Freefaller @1.1.1    one month ago

You'll be fine with it??!!.....wow! As long as you're fine, thats all that matters i guess!.....jeez!

 
 
 
Freefaller
1.1.8  seeder  Freefaller  replied to  Willjay9 @1.1.7    one month ago
You'll be fine with it

Yes, sometimes if patients are violently resisting treatment then they have to be strapped down.  While I'm sure no one likes doing so, it is occasionally required.

 
 
 
Kathleen
1.1.9  Kathleen  replied to  sandy-2021492 @1.1.3    one month ago

They are not easy to complete.

 
 
 
Kathleen
1.1.10  Kathleen  replied to  Freefaller @1.1.8    one month ago

I hope not, no one should be forced to take medical treatments like that.  Sounds like medieval times.

 
 
 
Freefaller
1.1.12  seeder  Freefaller  replied to  Kathleen @1.1.10    one month ago

Agreed I hope strapping her down isn't necessary either

 
 
 
sandy-2021492
1.1.13  sandy-2021492  replied to  Kathleen @1.1.9    one month ago

No, they're not.  Neither is dying from cancer.

 
 
 
Kathleen
1.1.14  Kathleen  replied to  sandy-2021492 @1.1.13    one month ago

Depending on the stage, it might be better to stop them and focus on pain control. If she has a good chance, then they should talk to her about her chances.  It’s easy for us to tell her what she should do, we are not in her shoes. I am saying this because my sister went through it and it hits home with me.  Nothing against you, but I have seen some very uncaring doctors. 

 
 
 
sandy-2021492
1.1.15  sandy-2021492  replied to  Kathleen @1.1.14    one month ago

I understand, but this is often a survivable cancer.  From another article, she has undifferentiated embryonal sarcoma.

https://www.archivesofpathology.org/doi/full/10.5858/arpa.2013-0463-RS

Studies 6 , 28 30 have shown improved survival rates, ranging from 70% to 100%, in patients who were treated with multimodal therapy. The recurrence rate in UESL is higher during the first 2 years after surgery, and the risk is higher with positive resection margins and cases with spontaneous or iatrogenic rupture of the hepatic lesion. 6


CONCLUSIONS

In conclusion, although UESL is predominantly seen in children, the lesion can occur at any age. Because its clinical and radiological findings are often not specific, the diagnosis of UESL relies on histologic examination and immunohistochemical evaluation. The multimodal treatment necessitates concise and timely diagnosis to improve the survival rate.

This girl can probably survive this cancer, but not if her mom is allowed to keep screwing around with vitamins and crap.

 
 
 
Kathleen
1.1.16  Kathleen  replied to  sandy-2021492 @1.1.15    one month ago

After hearing about her chances then she should try these treatments.  I hope everything turns out for her...

 
 
 
MrFrost
1.1.17  MrFrost  replied to  Freefaller @1.1.8    one month ago
Yes, sometimes if patients are violently resisting treatment then they have to be strapped down.

Not sure about Oregon, but in Washington, that's illegal. Only in very rare cases is it allowed. Chemical restraints are also illegal, (it's called "snowing" a patient...get them so high that they can't move). 

 
 
 
Perrie Halpern R.A.
1.1.18  Perrie Halpern R.A.  replied to  sandy-2021492 @1.1.6    one month ago
Patients who use alternative "medicine" are more likely to die than patients who are treated conventionally.

Just ask Linda McCartney. Oh yeah, you can't. She's dead from alternative medicine, which she gave up on, but by then it was too late.

 
 
 
Perrie Halpern R.A.
1.1.19  Perrie Halpern R.A.  replied to  Kathleen @1.1.14    one month ago
Nothing against you, but I have seen some very uncaring doctors. 

Then you have the wrong doctors. 

 
 
 
Tacos!
2  Tacos!    one month ago

I don't know what the right medical decision is, so I won't try to weigh in on that. I am curious about some things, though:

Who will be expected to pay for this court ordered treatment?

It sounds like the state and the doctors have quite the legal team! Who is the lawyer for the mom? The child? This court fight looks pretty one-sided.

Can they get a second or third opinion on treatment? Maybe call in some doctors from out of state? Why are these particular doctors the last word on the prognosis and treatment for this girl?

This kid is 13. Isn't that old enough to have some say in her course of treatment, if any? If not, shouldn't it be? If she wanted birth control or an abortion, she'd be able to get that without anyone's permission. Why isn't she competent to make other decisions for herself?

Watch the video. She isn't saying she wants to ignore the cancer. She's saying she wants to take a different approach. Why does anyone have the right to overrule that?

 
 
 
katrix
2.1  katrix  replied to  Tacos! @2    one month ago

I had responses to many of your comments written .. and I deleted them all.

Vitamins do NOT cure cancer. I assumed you knew that.  

 
 
 
Tacos!
2.1.1  Tacos!  replied to  katrix @2.1    one month ago

You'd have done better to keep deleting.

 
 
 
sandy-2021492
2.1.2  sandy-2021492  replied to  Tacos! @2.1.1    one month ago

Why?

"Treating" cancer with woo is medical neglect.

 
 
 
Freefaller
2.1.3  seeder  Freefaller  replied to  katrix @2.1    one month ago
I had responses to many of your comments written

Your a better person than I, with so many questions in one post I never even considered answering

 
 
 
Tacos!
2.1.4  Tacos!  replied to  Freefaller @2.1.3    one month ago

And yet here you are. Is it really that important for you guys to let everyone know just how deeply offended you are by a few questions?

 
 
 
Tacos!
2.1.5  Tacos!  replied to  sandy-2021492 @2.1.2    one month ago

with woo?

 
 
 
sandy-2021492
2.1.6  sandy-2021492  replied to  Tacos! @2.1.5    one month ago

Quackery.  Pseudoscience.

 
 
 
Tacos!
2.1.7  Tacos!  replied to  sandy-2021492 @2.1.6    one month ago
Quackery.  Pseudoscience.

Do you have the full list of her plan for treatment in front of you or are you just assuming there is no justification for the course of action they want to take?

 
 
 
sandy-2021492
2.1.8  sandy-2021492  replied to  Tacos! @2.1.7    one month ago

CBD oil doesn't cure liver cancer.

Vitamins don't cure cancer.

She's also using some herbs, according to one source.  There are no herbs that cure cancer.

There is no justification for bullshit "cures".

 
 
 
Freefaller
2.1.9  seeder  Freefaller  replied to  Tacos! @2.1.4    one month ago
And yet here you are.

It's my seed I have to be here (really it's in the rules)

Is it really that important for you guys to let everyone know just how deeply offended you are by a few questions?

Not offended, just not interested in answering. 

Seriously I know nothing more about this case than you do so most of my answers would have been "I don't know".  If you're truly interested in getting answers I wish you the best of luck with your research.

 
 
 
Tacos!
2.1.10  Tacos!  replied to  sandy-2021492 @2.1.8    one month ago
CBD oil doesn't cure liver cancer.

Vitamins don't cure cancer.

She's also using some herbs, according to one source.  There are no herbs that cure cancer.

There is no justification for bullshit "cures".

As far as I know, nothing "cures" cancer. You can try to get it rid of it with surgery, chemo, or radiation, but those things don't always work. No one can tell this girl that anything that happens in the hospital is 100% guaranteed to cure her cancer. So "bullshit cures" may be a matter of perspective.

 
 
 
Tacos!
2.1.11  Tacos!  replied to  Freefaller @2.1.9    one month ago

I don't care if you (or anyone else) disagree with me, but the comments above are passive aggressive personal attacks and unnecessary. I am not the topic.

 
 
 
sandy-2021492
2.1.12  sandy-2021492  replied to  Tacos! @2.1.10    one month ago

Chemo, surgery, radiation, do often cure cancer.  They get rid of it,and it doesn't come back.  No, they aren't 100% effective.  Cures rarely are - even antibiotics don't knock out strep every time, although they almost always do.

Patients who use alternative "medicine" are more likely to die than patients who are treated with actual medicine.

 
 
 
Tessylo
2.1.13  Tessylo  replied to  Freefaller @2.1.9    one month ago
'And yet here you are.'

'It's my seed I have to be here (really it's in the rules)'

He does that all the time.  Ridiculous.  

Tells me on my own seeds that I shouldn't comment if I don't want to answer his demands.

Again, ridiculous.  

 
 
 
Tessylo
2.1.14  Tessylo  replied to  Tacos! @2.1.11    one month ago

[Removed]

 
 
 
Tacos!
2.1.15  Tacos!  replied to  Tessylo @2.1.13    one month ago

I am not the topic. Is that so hard to understand?

 
 
 
Freefaller
2.1.16  seeder  Freefaller  replied to  Tacos! @2.1.11    one month ago
I don't care if you (or anyone else) disagree with me,

Yet here you are

but the comments above are passive aggressive personal attacks and unnecessary

Is it really that important for you to let everyone know just how deeply offended you are

 
 
 
Freefaller
2.1.17  seeder  Freefaller  replied to  Tessylo @2.1.13    one month ago
Again, ridiculous

Actually personally speaking I gotta disagree with you here, though limited in number generally our exchanges have been respectful and at times I agree with his points.

 
 
 
Tacos!
2.1.19  Tacos!  replied to  Freefaller @2.1.16    one month ago

Is it really that important for you to let everyone know just how deeply offended you are

You have a problem with me pointing out your attacks? I didn't force you to do that. You're the one who chose to talk about me instead of the topic. It will be up to you to continue that course.

So what do you want to do? Do you want to keep insisting on your right to talk about me? Do you want to continue to berate me for standing up for myself? Or would you like to get back to the seed?

 
 
 
Tessylo
2.1.20  Tessylo  replied to  Freefaller @2.1.17    one month ago

Actually personally speaking I gotta disagree with you here, on my seeds it is a different story.  

 
 
 
Freefaller
2.1.21  seeder  Freefaller  replied to  Tacos! @2.1.19    one month ago
Is it really that important for you to let everyone know just how deeply offended you are

Again not offended, your assumptions of how I feel about anything have thus far been inaccurate at best and pretty much meaningless

You have a problem with me pointing out your attacks?

No problem at all

So what do you want to do? Do you want to keep insisting on your right to talk about me? Do you want to continue to berate me for standing up for myself? Or would you like to get back to the seed?

No worries Tacos I'm pretty adaptable so I'll get along fine no matter how things go

 
 
 
Freefaller
2.1.22  seeder  Freefaller  replied to  Tessylo @2.1.20    one month ago

Cool

 
 
 
Tacos!
2.1.23  Tacos!  replied to  sandy-2021492 @2.1.8    one month ago
CBD oil doesn't cure liver cancer.

Can you cite a study demonstrating that? Because it just might.

Study On Cannabis Chemical As A Treatment For Pancreatic Cancer May Have 'Major Impact,' Harvard Researcher Says

"We were quite surprised that the drug could inhibit the growth of cancer cells in other parts of the body, representing metastasis, that were not targeted by the treatment,”
 
 
 
sandy-2021492
2.1.24  sandy-2021492  replied to  Tacos! @2.1.23    one month ago

In a small study using mice and cell cultures.

https://www.frontiersin.org/articles/10.3389/fonc.2019.00660/full

Not really ready for FDA approval yet.

 
 
 
Tacos!
2.1.25  Tacos!  replied to  sandy-2021492 @2.1.24    one month ago
Not really ready for FDA approval yet

FDA approval is a long road, and studies of almost anything derived from marijuana are understandably in their earliest phases. However, I think it's fair to say that the genuine scientific interest in the possibilities moves it beyond the realm of "bullshit cures, woo, quackery, etc."

 
 
 
sandy-2021492
2.1.26  sandy-2021492  replied to  Tacos! @2.1.25    one month ago

The scientists who are investigating CBD have not touted it as a cure.  But significant number of uneducated people hear "it might kill cancer cells", and have decided that CBD oil is now better than chemo, surgery, radiation, or immunotherapy.  And woohoo!  It's "natural", to boot.

The chemical being investigated for pancreatic cancer (not liver cancer, nor yet undifferentiated embryonal sarcoma, and in mice, not humans) is only present in small amounts in marijuana.

CBD oil is derived from hemp, and there is no group with oversight to determine whether any active ingredients even exist in the product as sold, or in what amounts.

Interest in the possibility that CBD may help treat cancer is not woo or bullshit.  But claiming that it does and declining therapies that actually have been show to work most certainly is woo, bullshit, and quackery.

 
 
 
Tacos!
2.1.27  Tacos!  replied to  sandy-2021492 @2.1.26    one month ago

I'm of the opinion that 1) medical science doesn't know every damned thing, 2) medical science gets shit wrong every hour of every day, and 3) people should be allowed to make their own medical decisions.

That doesn't mean I'm anti-medicine or anti-science. And considering the fact that this mom went to doctors first  and - only after trying what they suggested - finally got fed up, I would say she's not anti-medicine either.

According to this study at Johns Hopkins , "medical errors" is the third leading cause of death in this country after heart disease and cancer. They figure 250,000 people die every year in the United States of the BestMedicineOnEarth.

And believe it or not, that's a conservative figure.

This report published in the Journal of Patient Safety estimates that as many as 440,000 people die prematurely in the US every year as a result of "preventable harm to the patients" inflicted in hospitals.

Those numbers do not inspire confidence.

Unless you have some reason to pronounce this mom and her kid as incompetent or mentally ill, (beyond the simple fact that they made a decision you don't like) then they should be allowed to make their own choices.

 
 
 
sandy-2021492
2.1.28  sandy-2021492  replied to  Tacos! @2.1.27    one month ago

The mom's decisions show her to be incompetent.  And the child is a minor.  Why do you want to let the mom kill her child?

 
 
 
Perrie Halpern R.A.
2.1.29  Perrie Halpern R.A.  replied to  Tacos! @2.1.10    one month ago

That's funny. I know a 27 year old who had cancer when he was a 1.5 years old, and he is fine today. 

My cousin had cancer when he was 24 and it never came back. 

Of course people are cured of cancer. You want a 100% guarantee.. life doesn't come with one of those.

 
 
 
Trout Giggles
2.1.30  Trout Giggles  replied to  Tacos! @2.1.27    one month ago
"medical errors" is the third leading cause of death in this country after heart disease and cancer. They figure 250,000 people die every year in the United States of the BestMedicineOnEarth.

I believe that! My mother is one of those statistics. My ankle is proof that not all doctors are competent.

 
 
 
Tacos!
2.1.31  Tacos!  replied to  Perrie Halpern R.A. @2.1.29    one month ago

I had a dog with a massive tumor in his paw - right in the middle of the pad. My vet was positive we would be amputating the dog's foot. At the suggestion of a friend, we started giving the dog cat's claw supplements and no other treatment. In a matter of several weeks, the tumor shrank and disappeared completely. He lived for years afterward with all four feet.

 
 
 
MrFrost
2.2  MrFrost  replied to  Tacos! @2    one month ago

I just want to say this, then someone can flag me for it...

Tacos asked some valid questions and while he and I will likely never ever agree on anything political, it bothers me that he was attacked from #2 on. Really not cool. If you don't agree, fine, present your case or move on. Constant badgering is non productive and petty. 

 
 
 
Tacos!
2.2.1  Tacos!  replied to  MrFrost @2.2    one month ago

Thank you, I appreciate that.

 
 
 
MrFrost
2.2.2  MrFrost  replied to  Tacos! @2.2.1    one month ago

jrSmiley_13_smiley_image.gif

 
 
 
Kathleen
2.2.3  Kathleen  replied to  Tacos! @2.2.1    one month ago

It’s a shame that some people don’t take their own advice.

 
 
 
MrFrost
2.2.4  MrFrost  replied to  MrFrost @2.2.2    one month ago

It's a shame some people are cowards and too stupid realize it.

 
 
 
JohnRussell
3  JohnRussell    one month ago

It is not an ideal situation, but the girl should get the best treatment possible according to currently accepted medical procedures. That is all anyone can do and it is what they should do.  The mother can try experimental treatments on herself if the time ever comes. 

There are cases where the state, acting on behalf of society, needs to protect the best interests of a minor. 

 
 
 
Ronin2
3.1  Ronin2  replied to  JohnRussell @3    one month ago

The state and doctors had better hope for the best. If anything goes wrong, and apply a very liberal definition of anything, they will be sued into non existence.

This case has national, if not world wide attention, now. 

 
 
 
Freefaller
3.1.1  seeder  Freefaller  replied to  Ronin2 @3.1    one month ago
they will be sued into non existence.

Maybe but doubtful as I'm sure all are insured out the hoopla

This case has national, if not world wide attention, now. 

I don't know why, this case is hardly the first time courts have ruled for states rights overruling parental rights in medical matters.  Other cases that I know of have usually involved religious parents refusing medical treatment and instead trying to pray their child better.

 
 
 
Ronin2
3.1.2  Ronin2  replied to  Freefaller @3.1.1    one month ago
Maybe but doubtful as I'm sure all are insured out the hoopla

Figure of speech. Anything goes wrong and they will be held accountable, even more so since they took this through the courts and made it a national issue.

I don't know why, this case is hardly the first time courts have ruled for states rights overruling parental rights in medical matters.  Other cases that I know of have usually involved religious parents refusing medical treatment and instead trying to pray their child better.

You underestimate Americans ability to sue over anything and everything. Also, the desire to be tied to a high profile case that has national exposure. If the mother didn't have good representation before, then she will if anything goes wrong.

 
 
 
Freefaller
3.1.3  seeder  Freefaller  replied to  Ronin2 @3.1.2    one month ago
Figure of speech. Anything goes wrong and they will be held accountable,

Absolutely agree

You underestimate Americans ability to sue over anything and everything. Also, the desire to be tied to a high profile case that has national exposure. If the mother didn't have good representation before, then she will if anything goes wrong.

All true as well.  Just hope nothing goes bad and that whole mess can be avoided.

 
 
 
Ronin2
4  Ronin2    one month ago

I am not going to pretend I know the medical prognosis for her liver cancer. The article doesn't state her chances for recovery.

I found this web site showing survival percentages.

https://www.cancer.net/cancer-types/liver-cancer/statistics

Not really great odds according to this.  Again, no idea as to the type of cancer she has (outside of liver); or how far it has progressed.

 
 
 
Kathleen
4.1  Kathleen  replied to  Ronin2 @4    one month ago

It’s hard to determine what she really should be doing unless we know the prognosis. If she is in late stage, it might me better to stop treatments and go to hospice care. If she has a good chance, then see what she is able to withstand. We are not in her shoes either, so that is another thing to consider.  Make the best of the time she has left. After it gets in your liver, that is not usually good.

 
 
 
Tacos!
4.2  Tacos!  replied to  Ronin2 @4    one month ago
The article doesn't state her chances for recovery.

I did find a story that says the doctors are saying it's 70% that surgery will stop the spread of the cancer. On the other hand, mom claims that CBD oil has reduced the existing cancer already by 90%.

 
 
 
MrFrost
4.2.1  MrFrost  replied to  Tacos! @4.2    one month ago

I did find a story that says the doctors are saying it's 70% that surgery will stop the spread of the cancer. On the other hand, mom claims that CBD oil has reduced the existing cancer already by 90%.

Could be truth to that, but I would ask how the mother knows that? 

 
 
 
Tacos!
4.2.2  Tacos!  replied to  MrFrost @4.2.1    one month ago
I would ask how the mother knows that

I'm curious as well.

 
 
 
MrFrost
4.2.3  MrFrost  replied to  Tacos! @4.2.2    one month ago
I'm curious as well.

Could be she took her to another doctor, but...have my doubts, they would just confirm what other doctors have said. 'Tis a mystery. 

 
 
 
Trout Giggles
4.2.4  Trout Giggles  replied to  MrFrost @4.2.1    one month ago

Maybe Mom has x-ray vision and can see inside her daughter's liver

 
 
 
JaneDoe
4.3  JaneDoe  replied to  Ronin2 @4    one month ago

I tried looking for an article I read a few days ago but I can’t seem to find it again.

It stated that she had Undifferentiated embryonal sarcoma of the liver which occurs predominantly in children.

 I found a little information on that at this link. 

https://www.ncbi.nlm.nih.gov/pubmed/25611111

Multimodal therapy with surgery, chemotherapy, and radiation therapy has drastically improved the prognosis of patients with undifferentiated embryonal sarcoma of the liver. This successful management requires timely diagnosis for superior outcome.

 
 
 
Ronin2
4.3.1  Ronin2  replied to  JaneDoe @4.3    one month ago

Thank you for the link and information.

Hopefully things will work out for her and she can recover. 

 
 
 
JaneDoe
4.3.2  JaneDoe  replied to  Ronin2 @4.3.1    one month ago

You’re welcome.

 I hope everything goes her way too. 

 
 
 
Kathleen
5  Kathleen    one month ago

Those treatments are brutal.  I think people seem to forget this.  

 
 
 
Gordy327
5.1  Gordy327  replied to  Kathleen @5    one month ago

Suffering and dying from cancer can also be brutal. But yes, treatments for it can be difficult to endure. But without such treatments, we know what the outcome will likely be.

 
 
 
Kathleen
5.1.1  Kathleen  replied to  Gordy327 @5.1    one month ago

I understand, but I think there are people that don’t. 

 
 
 
Gordy327
5.1.2  Gordy327  replied to  Kathleen @5.1.1    one month ago

I'll bet there are those who don't understand. 

 
 
 
Raven Wing
5.1.3  Raven Wing  replied to  Gordy327 @5.1    one month ago
But yes, treatments for it can be difficult to endure

Yes, for both the patient and their family.

The type of cancer that took the life of my young Son is so rare that there are less than 500 cases reported world wide every year. It is a terminal cancer, ravenous tumors that feed on muscle tissue and spread throughout the body through the blood. 

We all knew going in that there was no chance of of his survival, and the stuff they used for Chemo treatments was nothing less than highly toxic waste, with a skull and cross bones on the container, and it was a horrible treatment to endure. He had to wear a canister of the stuff on each leg for an entire week, starting off with a mild version and going to the highest level of the stuff at mid week, and then tapering off for removal at the end of the week. This had to be done twice a month between surgeries to remove the tumors.

People ask, why did he go through all this when the end was well known. It was because the type of cancer was so rare, and normally struck elderly people who already had health issues and they usually did not live but a few months after being diagnosed, if that. Thus, the doctors had little time to do any real studying of the disease.

Because my Son was so young and had been in excellent health before getting the cancer, the world wide Specialist in the type of cancer my Son had, was presented some valuable time for the Specialist to study the disease. So my Son agreed to the Chemo and resultant surgeries to remove the tumors to help keep him alive as long as possible. 

My Son had been to the Children's Hospital in Los Angeles and seen the many children there dealing with all types of cancer, some treatable, some terminal. And my Son said that if they could learn more about the disease from him that might one day save another child, he would do what could be done to help buy time for the doctors.

He had resolved himself to leave this world, knowing there was no cure for him, and he handled the entire situation like a true Warrior. I can only pray that his sacrifices will help doctors find a cure to save other children one day.

 
 
 
JaneDoe
5.1.4  JaneDoe  replied to  Raven Wing @5.1.3    one month ago
I can only pray that his sacrifices will help doctors find a cure to save other children

I hope so too. Your son... most definitely a brave young warrior!

 
 
 
Kathleen
5.1.5  Kathleen  replied to  Raven Wing @5.1.3    one month ago

I am sorry to hear about your son Raven, he was so brave.  He is an inspiration to us all....  I am sure he is with you always.

 
 
 
Raven Wing
5.1.6  Raven Wing  replied to  Kathleen @5.1.5    one month ago

Thank you Kathleen. And yes, he is with me always. (smile)

 
 
 
Gordy327
5.1.7  Gordy327  replied to  Raven Wing @5.1.3    one month ago

I'm sorry for your loss Raven.

 
 
 
Trout Giggles
5.1.8  Trout Giggles  replied to  Raven Wing @5.1.3    one month ago

(((RAven)))

He sounds like he was a fine young man and brought lots of joy to your life. I'm sorry that he was taken from you so soon

 
 
 
sandy-2021492
5.1.9  sandy-2021492  replied to  Raven Wing @5.1.3    one month ago

Heartbreaking and inspiring, Raven Wing.  You raised a very special man.

 
 
 
Raven Wing
5.1.10  Raven Wing  replied to  Gordy327 @5.1.7    one month ago

Thank you Gordy.

 
 
 
Raven Wing
5.1.11  Raven Wing  replied to  Trout Giggles @5.1.8    one month ago

He was indeed, Giggles. He was always big for his age, bigger than most kids his age. But, I taught him not to use his size to take advantage of other children. He had a big heart and always wanted to help others. Even though he was still just a young boy, the idea to choose to help the doctors, and hopefully on day, others, with what time he had left was his. He didn't know fully what he would have to go through to do that, but, he never complained, and the idea that he might in some way be able to help other children like himself seemed to give him the courage to face what he had to endure.

While it was so very painful for me to lose him so early in his life, I am so truly proud of what he left behind our of his desire to help others.

 
 
 
Raven Wing
5.1.12  Raven Wing  replied to  sandy-2021492 @5.1.9    one month ago

Thank you sandy. Being the kind of person he was, and willingly making the kind of sacrifices he did with such an open heart, makes me very proud of him. And I know he is still with me in Spirit. 

 
 
 
Raven Wing
5.1.13  Raven Wing  replied to  JaneDoe @5.1.4    one month ago

Thank you Jane. He would be very proud to hear you say that. He was always very proud of his Cherokee heritage.

 
 
 
Split Personality
6  Split Personality    one month ago
rationalwiki.org/wiki/Woo

Woo, also called woo-woo, is a term for pseudoscientific explanations that share certain common characteristics, often being too good to be true (aside from being unscientific). The term is common among skeptical writers.

 
 
 
†hε pε⊕pレε'š ƒïšh
7  †hε pε⊕pレε'š ƒïšh    one month ago

Woman's right to choose. I have to throw my support to Mom in this case.

 
 
 
Freefaller
7.1  seeder  Freefaller  replied to  †hε pε⊕pレε'š ƒïšh @7    one month ago
This case has national, if not world wide attention, now. 

Cool

 
 
 
Gordy327
7.2  Gordy327  replied to  †hε pε⊕pレε'š ƒïšh @7    one month ago

The law might disagree, especially when the health of a minor is at stake.

 
 
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