Arvo Mr Frosty...hmm a dreaded diagnosis that brings with it all different thoughts, anxieties and upheaval in your life for you and your family....
First off easier said than done...don't panic!!... the shock of being told it all takes time to sink in and grasp...
The hardest part I found was telling my family and friends and thinking will I be here this time next year?? And what in the hell is going to happen??...
Then the medical side of things moves in..and after being told I had to go to a bigger town and hour away to a specialist was somewhat daunting...but we went and I met the most wonderful Haematologist..
From there trips back and forth to Melbourne on the train, visits to a major Melbourne Hospital and all the stuff that goes with it...5 hours away each way...clicked up a few thousand kms and right in the middle of COVID...
Stem cell transplant, radiation, chemo words that you try and get your head around and grasp what is going to come and how you will cope...
But after being told initially I have multiple myeloma I was lying in the hospital bed and just thought..
Bloody hell...as much as I want to change it, I can't so just get on with it...and to be honest that is what I have stuck by...and just cross the bridges when you come to them...don't look to far ahead and stress, take it a day at a time...
2019 it started but I am still here and enjoying life...3 years in September I have been off all medications..yes it has changed the way I live, the bloody thing attacked my spine of all places..and it has limited somethings I can do..but considering where I was to what I do now I am damn lucky...
Feel free if you want to have a gas bag, I can only tell you what has gone on with myself...one thing I did do and told the doctors, nurses and specialists I do not want to know all the jargon that goes with it..no interest in levels, measures, what is going on with it etc etc while under going treatment...but that's me...
A guy I was sharing a room with he was pedantic and obsessed with daily facts and figures writing up on the white board etc...stuff that I didn't want to know or to be honest care about...all I wanted to know was when can I go home....and when will life return to as near normal as possible..
Yes the myeloma will come back, it is a given..every 3 months I hold my breath is the bloody thing back, but so far up to two weeks ago..no sign of it ..and so we continue...
I wish you well, I will be thinking of you as you travel down this rough road..many have gone before us and many will follow after us...
I wish you security of family and friends to help you through and above all peace in what ever form you can find it.
Hang in there Frosty, you are tougher than you think...
Have a great week.
damn, that's fucked up ...
I sincerely hope your health professionals can get a handle on it so that one day we can meet.
Sorry to hear it.
I hope you find the treatment you need and stay strong.
Not good news, but many cases can be cured. As well, there can still be long remissions. I think we all hope for the best for you.
Hope you get a successful treatment
Yes, Mr. Frost. How are you? What is your state of mind? What do you know and are willing to share?
I very much hope you feel well, stay strong and get over this thing as soon as possible. Please.
Arvo Mr Frosty...hmm a dreaded diagnosis that brings with it all different thoughts, anxieties and upheaval in your life for you and your family....
First off easier said than done...don't panic!!... the shock of being told it all takes time to sink in and grasp...
The hardest part I found was telling my family and friends and thinking will I be here this time next year?? And what in the hell is going to happen??...
Then the medical side of things moves in..and after being told I had to go to a bigger town and hour away to a specialist was somewhat daunting...but we went and I met the most wonderful Haematologist..
From there trips back and forth to Melbourne on the train, visits to a major Melbourne Hospital and all the stuff that goes with it...5 hours away each way...clicked up a few thousand kms and right in the middle of COVID...
Stem cell transplant, radiation, chemo words that you try and get your head around and grasp what is going to come and how you will cope...
But after being told initially I have multiple myeloma I was lying in the hospital bed and just thought..
Bloody hell...as much as I want to change it, I can't so just get on with it...and to be honest that is what I have stuck by...and just cross the bridges when you come to them...don't look to far ahead and stress, take it a day at a time...
2019 it started but I am still here and enjoying life...3 years in September I have been off all medications..yes it has changed the way I live, the bloody thing attacked my spine of all places..and it has limited somethings I can do..but considering where I was to what I do now I am damn lucky...
Feel free if you want to have a gas bag, I can only tell you what has gone on with myself...one thing I did do and told the doctors, nurses and specialists I do not want to know all the jargon that goes with it..no interest in levels, measures, what is going on with it etc etc while under going treatment...but that's me...
A guy I was sharing a room with he was pedantic and obsessed with daily facts and figures writing up on the white board etc...stuff that I didn't want to know or to be honest care about...all I wanted to know was when can I go home....and when will life return to as near normal as possible..
Yes the myeloma will come back, it is a given..every 3 months I hold my breath is the bloody thing back, but so far up to two weeks ago..no sign of it ..and so we continue...
I wish you well, I will be thinking of you as you travel down this rough road..many have gone before us and many will follow after us...
I wish you security of family and friends to help you through and above all peace in what ever form you can find it.
Hang in there Frosty, you are tougher than you think...
Can't beat a smiling Aussie Quokka...😁
I have COBD. I'm slowly suffocating. I know that... but I remember the day my first biopsy results came back: "benign". I rejoiced.
Cancer is terrifying, even when we intellectually know that much can be done. I was terrified.
So... the best we can do is tell you that we care. Very much.
Get well!
I'm so sorry to read this, and hope your medical team can get you fixed up.
Cancer sucks. Kick its ass.
Trust your doctors. They can work wonders at times. Good luck on this tough journey.
Sorry to hear this. Cancer does truly suck.
I'm sorry, Mr. Frost. I hope you can get the treatment needed to kick its ass
Sorry to hear this, hoping you can get the best treatment and beat this.
Really sorry to hear this. I hope it gets resolved quickly and without discomfort.
Thanks everyone.